Human Genetic Research and Ethics

On page 93, Hughes mentions that UCSF and Harvard faced some difficulties because their research used human genetic material. I wanted to know more about using human genetic material in research. I found an article that talked about human genetic research and all that it entails.

http://www.pre.ethics.gc.ca/eng/policy-politique/initiatives/tcps2-eptc2/chapter13-chapitre13/

This article addresses how genetic research can violate some ethics. This is due to all the information that researches can get from a person’s genetic material. This includes ancestry and cultural background. The question is asked if this is too much to know? Does this violate a person’s privacy? The article brings up a lot of good points about this and really makes you one think about how much should be kept private.

The article also talks about the rights that the individual has when it comes to the researchers sharing the findings of the experiment and who can know the information. I was also surprised to read about genetic material banks where genetic material is collected and stored for future analysis.

This article really opened my eyes to how challenging the world of human genetic research is and how many different factors need to be considered when doing this type of research.

Human Genetic Research and Ethics